NDIS: The lived impact on representatives and carers

NDIS: The lived impact on representatives and carers

The Abbwell Group

The Abbwell Group

01/10/2025

1) More administrative load, less certainty

Family members, nominees and support coordinators are spending more time gathering “clear evidence” for reassessments, often chasing multiple therapy reports and progress updates. The NDIA’s own public guidance still tells people that when requesting a plan change, they should provide medical reports, therapy assessments and recommendations from health professionals. NDIS

At the same time, new Variation and Reassessment Rules have been introduced, including the ability for the NDIA to vary the timing of reassessments. Stakeholder summaries confirm that consultations occurred in 2024 and that rule changes are in effect, which adds complexity for carers to track. Department of Social Services+1

2) Financial and emotional strain when plans are cut or run out

Advocacy case studies and news reports have documented instances where plan funds have been reduced or exhausted, leaving families scrambling to fill gaps or providers working unpaid. While individual cases are not the whole system, they illustrate the stakes for carers when plans do not match need and when review pathways are slow. advocacyforinclusion.org+1

Carer surveys paint a broader backdrop. National carer research released in 2024 and 2025 highlights sustained financial stress, reduced well-being, and difficulty navigating support systems. While these surveys are not NDIS-only, they capture the cumulative pressure on unpaid carers who also act as de facto case managers during reassessments. Carers Australia+2Carers NSW+2

3) Delays and uncertainty around reviews

Public reporting in 2024 noted fewer plan reassessments being completed and performance against service guarantees lagging. For carers, slower reassessment turnarounds mean longer periods of uncertainty, and in some cases, risk of gaps in essential supports. The Australian

4) Planning around moving targets

The NDIA’s Outcomes Framework continues to monitor participant and family/carer outcomes, which is important, but families report day-to-day realities of aligning evidence to evolving rules and guidance. Even small procedural changes can compound workload for carers who are already time-poor. NDIS

What the government says it will change

The 2023 Independent NDIS Review and 2024–25 reforms

The government accepted the broad direction of the Independent Review’s final report (December 2023), which recommended a more consistent, transparent approach to assessments and planning, plus the introduction of “Navigators” to help people access the right mix of NDIS and non-NDIS supports. NDIS Review+1

In August 2024, Parliament passed the National Disability Insurance Scheme Amendment (Getting the NDIS Back on Track No. 1) Act 2024, which the government describes as the first legislative step to implement Review recommendations, tighten definitions and improve stewardship. Official fact sheets summarise these changes. Health and Ageing Department+1

Alongside legislation, new or updated Variation and Reassessment Rules have been consulted on and published by the Department of Social Services, setting out how plans can be varied and when reassessments occur. The plain-English summaries confirm who was consulted and the intent behind the rules. Health and Ageing Department+1

“Needs-based” and simpler evidence

Government messaging and recent reporting point to an intended shift to more consistent needs assessments that reduce reliance on multiple external reports. A notable development in late September 2025 flagged the use of a standardised digital assessment approach using the I-CAN tool, conducted by in-house assessors, with an explicit aim to avoid participants having to obtain costly medical documentation. Advocacy groups have cautioned that while this could reduce burden, it must not depersonalise assessments or be used to control costs at the expense of need. The Guardian

The NDIA’s own participant guidance, meanwhile, still states that clear evidence is required when asking for a plan change. This creates a practical tension for carers who are being told both that evidence burdens will reduce and that detailed documentation remains necessary today. NDIS

Will the reassessment process become truly needs-based?

What’s promising

  • Legislative foundation: Passing the 2024 amendment Act gives the NDIA and DSS a clearer legal footing to standardise processes recommended by the Review. That is a prerequisite for consistency. Health and Ageing Department
  • Rules and consultation: Publishing variation and reassessment rules and consulting with participant and carer groups is a step toward transparency. Department of Social Services
  • Standardised assessment intent: Moving toward structured, repeatable assessments using recognised tools could, in principle, reduce “who you get on the day” variability. The Guardian

The friction points that could undermine it

  • Cost-containment pressures: Federal budget papers and public reporting have emphasised large NDIS savings targets and growth caps. Even if clinically neutral on paper, these settings can be experienced by families as downward pressure during reassessments. The Guardian+1
  • Delivery capacity and timeliness: Performance data and media reporting point to backlogs and missed timeliness targets. A “needs-based” model only helps if decisions arrive before funds run out. The Australian+1
  • Evidence signals are mixed: Official guidance still asks for detailed external reports when participants request a plan change, while future models promise fewer burdens. Until guidance and practice are aligned, carers will keep gathering multiple reports to be safe. NDIS+1
  • Trust and communication: The Independent Review focused on restoring trust. Carers and representatives report that sudden or poorly explained changes erode confidence and increase advocacy workload. NDIS Review

Practical reality check

Is a participant-centred, truly needs-based reassessment process achievable?
Yes, in principle. The ingredients exist: enabling legislation, published rules, standardised assessment tools, and a commitment to navigation support. Health and Ageing Department+2Department of Social Services+2

Is it the likely near-term experience for carers and representatives?
Only if three things happen at the same time:

  1. Clear, unified guidance that explicitly reduces external evidence burdens and is reflected in day-to-day practice. Right now, guidance still directs participants to supply clinical reports when they seek plan changes. NDIS
  2. Service guarantees that are met, so reassessments occur before funds run out and without long gaps. Recent data and reporting suggest timeliness is still a challenge. The Australian
  3. Cost stewardship that does not translate into default downgrades. Budget controls are real, and carers feel the effects when plans are reduced or delayed. That pressure must be managed transparently with proper reasons and rights to review preserved under the Act and Rules. The Guardian+1

What carers and representatives can do now

  • Document functional need, not just diagnoses. Align evidence to goals and daily functioning, which remains central in NDIA decision-making and in participant outcomes reporting. NDIS
  • Track rule and guidance updates. The NDIA is updating operational guidance as reforms progress. Check the “Our Guidelines” page for the latest wording before a reassessment. NDIS
  • Use review rights if needed. Decisions under the new Management of Funding and Variation and Reassessment Rules are reviewable under section 99 of the NDIS Act. If a downgrade seems inconsistent with evidence, seek review. BCA
  • Escalate urgent risks. Where funding exhaustion creates immediate risk, ask about plan variations for urgent needs as contemplated in the new rules, and record all contacts and outcomes. Department of Social Services

Bottom line

The government’s stated direction is to make reassessments more consistent and needs-based, and to lighten the load of external reports, supported by new legislation, rules and a prospective shift to standardised, technology-enabled assessments. Health and Ageing Department+2Health and Ageing Department+2

For many carers and representatives today, the on-the-ground experience still includes heavy evidence gathering, variable timeliness, and anxiety about plan reductions. Those realities are tied not only to process design but also to system capacity and ongoing cost-containment settings. Until guidance, practice and performance all move in the same direction, a fully person-centred, needs-based reassessment process will remain a work in progress rather than the norm. NDIS+2The Australian+2

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